People with Down Syndrome tend to be lumped together, as if they are all alike. Nothing could be further from the truth!
People with Down Syndrome have more in common with family members, than with other people who have Down Syndrome
Yes, there are several physical markers that are shared by people with Down Syndrome, and there are a lot of similar quirks, or mannerisms that seem to be prevalent in most, but, truth be told my kids with Down Syndrome have more in common with their siblings and other family members than they do with others with Down Syndrome. We love meeting others who have Down Syndrome, and yes, we like to discuss and compare similarities of experience. Across the board, no matter culture or lifestyle, there are things we deal with that are the same. It is nice to meet someone who shares so many similar experiences. We understand each other on a certain level. However, the similarities end there. Each family is as unique as a snowflake, and each child within, again, is unique in their own right. For instance, people who have Down Syndrome are characteristically short, however we have a lot of tall genes in our family. Rudy is already 5’5” at almost 16, which is a quite a bit shorter than his dad was at that age, but he has plenty of time to grow, as his Dad didn’t finish growing until after he was 18! I don’t imagine Rudy will be as tall as his dad, but I imagine he will be very tall in comparison to other men with Down Syndrome. He also has no fat on him and lots of muscle. He is built just like pictures of his dad at 15! Is that surprising? He has 46 chromosomes that are imprinted with “family” info, he only has one “extra” (this comparison is not supposed to be “scientific” just a down to earth analogy). And furthermore, Rudy and Desi are as different as night and day!
So, in the spirit of uniqueness, but still acknowledging that 21st chromosome, here are
21 things about Rudy
- He tells his mama she is beautiful. Every. Single. Day.
- He loves to spend time with his grown-up sisters. Going anywhere. Doing anything.
- He has 5 (FIVE) sisters!
- He is never in a hurry.
- He has been able to cook an egg, unassisted, but supervised, since he was 5.
- He LOVES, LOVES, LOVES TOBYMAC! – favorite song “Speak Life”
- He likes to play with Legos
- He likes to help in the kitchen
- He makes his bed. Every day.
- He loves to go swimming
- He wants his own dog
- He likes to run
- He has a Siberian Hamster named Brian, who he takes very good care of
- He dries the dishes and puts them away, it’s his “chore”
- He never says anything bad about anyone
- He loves to eat. All kinds of food. All the time.
- Besides having Down Syndrome, he also registers on the Autism Spectrum
- He loves being around people
- He likes to camp out
- He knows when people don’t appreciate his uniqueness
- He never dwells on disappointment, he just moves on to the next thing he can look forward to
Persons who have Down Syndrome are unique and individual because they are created
Read about our two experiences finding out that our children have Down Syndrome: