Or: 21 Things about Desi!
More Alike than Different. That is a phrase used a lot in the Down Syndrome community. Why? Because pe
I discussed in Part 1 how individuals who have Down Syndrome are more like their family members than other people with Down Syndrome. They have a lot of the same physical traits, or markers that they share, however they have more in common with their family than they do others with Down Syndrome. Each family is so different; we, for instance homeschool, homestead, and prioritize building the kingdom of God. We spend our days at home, reading books, doing projects of all kinds (science, crafts, woodworking, cooking, art), tending to animals and learning how to care for them, building permaculture systems, planting seeds, weeding, harvesting, the kids climb trees, build forts, help care for the younger ones as well. In addition, we are involved in our Church and take turns in the nursery and participate in community outreach. On top of all that, we have 3 already grown children, making our family dynamics even more unique. And it is the same with every family. This family diversity makes for individual diversity. While one family spends time with their child who has Down Syndrome in play groups and doing awareness activities, and continues with multiple therapies for a long time, another might spend much of their time at Special Olympic events, and still another might spend all their time at rodeos, or traveling cross country. The variations are endless, as the number of families are so great! You do not have a lot in common with someone who spends all their time outside with animals if the only animal you’ve ever seen is in a book or video! However, you might really like that person, AND there is something that draws us to others with Down Syndrome. It is a connection that is strong. No matter the differences, there is a deep bond between us. There are things we don’t even have to speak, we just know. There are things no one else truly understands, but they do. But this is a strong bond despite all the other differences.
Besides the differences in individuals because of family culture and genetics, there is also a difference between individuals within the family. When Desi was born, we realized within minutes that she had Down Syndrome. We felt like, Okay, we’ve got this, been through this before. We were very happy that she didn’t have any health issues, but otherwise we assumed that our experience raising her would be very similar to that of raising Rudy. HA!
They don’t even look alike! You can tell they are part of this family, they both have the almond shaped eyes common among individuals with Down Syndrome, but they are unique in their own right. And their personalities? Desi is only three, but she is much more determined than Rudy, more like her oldest sister, Deborah. Rudy used to sit and cuddle for hours with whoever wanted to cuddle him until he was quite big. Desi, on the other hand, pretty much hasn’t had time for cuddles since she learned how to crawl! Rudy likes quiet and alone time, and prefers one on one time, while Desi loves to work a crowd. But, I don’t know why that surprised me. All of my children are so unique, they have always been so different from each other, to the core. It has always amazed me, how children with the same parents, same environment could be so different. And I expect, as they grow, Rudy and Desi will show even more uniqueness. Because they are people, created as individuals by the Almighty God, who loves diversity.
So in the spirit of that individality, but acknowledging that third copy of the 21st chromosome I’ll share
21 Things About Desi
- She is very busy – always on the move.
- She loves music!
- She likes to dance.
- Chickens are he favorite farm animal.
- She feeds the chickens each morning.
- Sometimes she gets to ride the goat!
- She loves to jump! she can’t get that high, but she makes a loud noise!
- She loves people – she has favorites!
- Sausage is her favorite food.
- She will guzzle her grown sister’s coffee every time they come over (even black with extra shots!)
- She is a very determined person.
- She likes books.
- She likes to roll downhill in the grass.
- She LOVES to swing!
- She loves to wave goodbye to anyone who has come to visit (they sometimes feel like she wants them to go, but she really just likes waving goodbye!).
- She follows the goat around, trying to get milk.
- She helps get the eggs, very carefully, but inevitably breaking one-which distresses her.
- She loves action songs.
- She likes to play “cooking” with my pots and old spice jars and ladels.
- She gives abundant and really sweet hugs!
- She loves to ‘go out’ with her daddy!
More on Down Syndrome:
(Affiliate links follow)
Count Us In: Growing up with Down Syndrome is an honest look at what having Down Syndrome is like From the perspective of two someones who have Down Syndrom. In their own words. I have read this and it is good.
The story of two sisters, one with Down Syndrome. From the “typical” sister’s perspective. I haven’t had the chance to read this, but I plan to
and also by the same author a fiction book. Looks intriguing!